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Ever been misdiagnosed?

Discussion in 'The Okie Corral' started by Glock&KimberLady, Oct 14, 2012.

  1. Glock&KimberLady

    Glock&KimberLady Morior Invictus

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    Lessee...the worst one was being definitively told I had sarcoma after an MRI... and spending six agonzing weeks wondering if I was going to lose my right foot and leg from the knee down...until I found a doc with some BALLS to cut it out and let me know it was a benign item.

    I have had four doctors (two of them notable) who gave differing diagnoses on the cause of my dysphagia (all of them incorrect). And I still choke when I eat. :steamed: One of those doctors told me he was pretty sure I had a Pancoast tumor, which upon Googling, scared the living daylights out of me until the CT came back all clear. (It's an odd lung cancer)

    More recently, a lump in my abdomen that flipped out my GP turned out to be overdevloped muscles from snowboarding. :rofl:

    Had surgery on a wonky knee (discoid meniscus with horizontal tear) by a doc whom I later found out had *zero* experience with that particular deformity. I'll see how snowboarding affects it this season (with a better brace) before I try again, with a different surgeon.

    Anyone had a misdiagnosis...or three....with a doc?

    I think Carlin said it best - doctors are guesswork in white coats.

    Side note - if you Google a combination of symptoms, you will in all likelihood scare the crap out of yourself. Don't Google symptoms.
     
    Last edited: Oct 14, 2012
  2. MB-G26

    MB-G26 Queen of Fail Lifetime Member

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    yes, btdt.

    Words filters here prevent me from speaking much further on the topic.
     

  3. Angry Fist

    Angry Fist Dehumanizer® Lifetime Member

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    My daughter was. They called it a throat infection, which turned out to be a UTI another hospital found out. She had to suffer for days because the antibiotics sterilized her samples before it could be properly diagnosed.
     
  4. Glock&KimberLady

    Glock&KimberLady Morior Invictus

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    :alex:

    Yes, love, I remember. PM me with how you've been! :hugs:
     
    Last edited: Oct 14, 2012
  5. Glock&KimberLady

    Glock&KimberLady Morior Invictus

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    I take it she was young? UTIs are nothing to sniff at in girls, they head onward and upward and when they get to your kidneys, they can make you wish you were dead.
     
  6. Harper

    Harper

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    Have you been tested for eosinophilic esophagitis? That's the first thing that came to mind.
     
  7. mr00jimbo

    mr00jimbo

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    I was running and stepped into a hidden 1 foot deep hole in the grass, which really hurt because my foot stayed in place and my body went forward.
    Went to the hospital, Xray said I fractured my fifth metatarsal so they put me in a cast. Went to see my GP, and he showed me what the Xray said: "No fracture found"

    Not life ending but it said right on the Xray report that I didn't break my foot, but the ER Dr (young woman) said I did.
    Ugh.
     
  8. SMOKEin

    SMOKEin

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    I was diagnosed with systemic lupus after have some skim samples tested. I was sent to a specialist that couldn't see me for a few weeks and of course I hit Google and was fully convinced I was soon to be a goner. I went to the specialist and after a round of tests, he advised me that false positives aren't that uncommon. I was furious and overjoyed at the same time.
     
  9. Glock&KimberLady

    Glock&KimberLady Morior Invictus

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    Yep, the last doc at Cedars-Sinai had me allergy tested...and discovered (much to his dismay) that I am "the most non-allergenic person" he'd ever seen. I went down to see him, and after a scope and a VERY VERY ***ing unpleasant manometry that lasted over two hours (I felt like a lab rat), he wanted to do more barium tests, more manometries, and more scopes. I went back to Idaho, set up for the tests, and found out I was pregnant. I figured unless I got to where I couldn't eat at all, I was done with years of tests, Botox, stretches, drugs, and guesses.
     
  10. Glock&KimberLady

    Glock&KimberLady Morior Invictus

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    ZOMG, I know how that feels. I told my mom I got to go through the early stages of cancer diagnosis up to the chemo point until I finally had the surgery to prove it wasn't cancer. Hair-raising. (No one would touch me, cancer docs didn't want it to spread by improperly removing it or impair my ability to walk if it WAS benign, orthos didn't want to deal with cancer)
     
  11. Averageman

    Averageman

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    I went to the Dentist in the Military and he found a "Tumor" in my jaw, so we remove it on the spot.
    Now at 20 I figured thats it pretty close to the noggin for this not to be serious.
    Come to find out I have a partial 3rd set of undeveloped teeth.
    Scared the crap out of me.
     
  12. Harper

    Harper

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    I'm not an expert but I thought the test for EE was a biopsy were they test for levels of eosinophils in the esophagus because they usually aren't even entirely sure if it's caused by food allergies or environmental allergies or something else. I didn't know pregnancy could cause dysphagia.
     
  13. dango

    dango

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    In a nut shell , six doctors later...................! :steamed:

    One Doctor said that it was symtimatic of Alcohol with-drawl ,

    Truely mirraculous for I don't drink.

    I feel your anger........!
     
  14. Scott3670

    Scott3670

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    6 years ago I had an episode where I had terrible gut pain (lower abdomen) and ended up in the ER. The initial was a hernia. The gastroenterologist came in and corrected the diagnosis to diverticulitis. They did a barium enema and other tests hich showed that my colon was inflamed, etc.

    I was admitted for a week of antibiotic therapy and it seemed to work a bit. The last piece of advice from the gastroenterologist was to get a colonoscopy. I did it a week later and it turned out I had a very early stage of colon cancer.

    I'm not sure that I would classify this as a misdiagnosis, rather one that wasn't thorough enough. The bottom line is that I was wise enough to take the doc's advice and get allow them to serve a search warrant on my colon, which literally saved my life.
     
  15. czsmithGT

    czsmithGT

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    I've been misdiagnosed. It goes with the territory of being sick. All things considered, I don't know why anyone would want to go through the time, hassle and cost of becoming a doctor these days. Doc Adams is my hero.
     
  16. CBennett

    CBennett

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    yes, instead of ulcerative colitis I had Crohns Disease lucky me
     
  17. Altaris

    Altaris

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    While not life threatening, it did hurt and was really annoying.

    After I twisted my knee funny while hiking the dr told me I just had a bruised knee, and to take some advil and rest it. It still hurt bad after a week, so I went to another dr who found out that I really tore my MCL.
     
  18. Glock&KimberLady

    Glock&KimberLady Morior Invictus

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    It doesn't. I quit the tests and such because you don't do barium swallows when pregnant. I've had dysphagia for years, gradually worsening. After nearly choking to death on a burrito, I'd had enough and in conjunction with a 60+ lb weight loss, figured I should get it checked.

    Doc wanted comprehensive allergy tests done, and determined between that, the scope appearance, and the scrape they took of my throat that EE wasn't the issue. My understanding is if you have EE to the point where dysphagia is an issue, the eosinophils show up in your bloodstream as well?

    Best he could do was retrograde peristalsis and incredibly high swallowing pressures. He was like a kid with a science experiment, brought in two students during the manometry, and was all but rubbing his hands together at the thought of "all the testing we need to do". He was bent when I got pregnant because it meant the end of the experiment.

    It was a little disturbing how jazzed he was, but I told myself he was just being thorough. :dunno:
     
  19. ArtificialGrape

    ArtificialGrape CLM

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    More of an inexcusable missed diagnosis than a misdiagnosis.

    When our oldest daughter was 8 she had become lethargic, her face always seemed dark and sunken, and she began bedwetting -- many of you know where this is going, but we didn't at the time -- so we took her to the pediatrician and she had dropped from 55 pounds to 48 pounds since her previous visit less than 6 months earlier.

    He conducted the exam and did not have any specific recommendation other than to schedule a follow-up over the summer -- this was Friday, March 7th, 2003. My wife not at all content with his answer spent the weekend looking into it.

    As you might imagine, everything pointed to juvenile diabetes. We took her back in on Monday and asked to have her tested. Yep, blood sugar in the 400s, and could well have been on the verge of a diabetic coma had we merely listened and ignored it for another 3 months.

    Next March will mark 10 years of an amazing young woman thriving with type I diabetes.

    -ArtificialGrape
     
  20. Harper

    Harper

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    I don't think so. I have EE and my blood Eosinophil level was within the normal range last time I had blood work done. I'm guessing they tested the 'scrape' for eosinophils? I don't know, I'm just asking because the two gastros I've been to did a biopsy for eosinophils.
    Also acid reflux is a big factor for me too. I notice a big difference when it's under control and when it's not.